*This schedule is subject to change
Welcome 8:00am Brian M. Culley, Conference Chair
Opening Remarks 8:15am Ted W. Love, M.D., Chief Executive Officer, Global Blood Therapeutics, Inc.

Panel 1: Burden and Cost of SCD in U.S.
Presentation 8:30am-8:45am Mary Hulihan, DrPH, Health Scientist, Epidemiology and Surveillance Branch, Division of Blood Disorders, National Center on Birth Defects and Developmental Disabilities, CDC


8:45am-9:00am Julie Kanter-Washko, M.D., Associate Professor, Pediatric Hematology/ Oncology, Medical University of South Carolina

Panel 2: Role of Novel Clinical Endpoints in New Drug Development
Moderator 9:05am – 9:45am Liana Moussatos, Ph.D., Managing Director and Senior Research Analyst, Wedbush Securities
Panelists Ann Farrell M.D.,Director, Division of Hematology Products in the Center of Drug Evaluation, Food and Drug Administration, Center for Drug Evaluation and Research Division of Hematology Products

Wally R. Smith, M.D., Professor Scientific Director, VCU Center on Health Disparities Director, VCU Adult Sickle Cell Program, Virginia Commonwealth University

Panel 3: Patient and Caregivers:  Daily Experience of SCD
Moderator 9:45am-10:25am Mattie A. Robinson, M.S., M.A., Founder, Micromattie Consulting
Panelists Lakiea Bailey, Ph.D., Executive Director, Sickle Cell Community Consortium

Gary A. Gibson, President & CEO, The Martin Center Sickle Cell Initiative

Talana Hughes, MPH, Executive Director, Sickle Cell Disease Association of Illinois (SCDAI)

Tiahna Hughes, patient advocate

Donnette Carroll, President, Sickle Cell Thalassemia Patients Network (SCTPN)

Video premiere Video featuring Jeffrey Zuttah, patient advocate
Break 10:25- 10:40am
Panel 4: Hemolysis and Its Clinical Consequences
Moderator 10:40am-11:10am Ritu Baral, Senior Biotechnology Analyst and Managing Director, Cowen & Company
Panelists Victor R. Gordeuk, M.D., Professor of Medicine, University of Illinois at Chicago

Kenneth Ataga, MBBS, Professor of Medicine, Director – Comprehensive Sickle Cell Program, UNC School of Medicine


Panel 5: Innovative SCD Adult Care Models
Moderator 11:10am-12pm Brian M. Culley, Conference Chair
Panelists Biree Andemariam, M.D., Associate Professor, Department of Medicine, UConn Health, Director, New England Sickle Cell Institute, Chief Medical Officer, Sickle Cell Disease Association of America

Mary E. Brown, President & CEO, Sickle Cell Disease Foundation of California

Diane Nugent, M.D., Executive Officer, Board President/Founder President/Medical Director, Center for Inherited Blood Disorders (CIBD)

Sophie M. Lanzkron, M.D., MHS, Associate Professor of Medicine, Johns Hopkins University School of Medicine

Karen L. Proudford, Ph.D., President, William E. Proudford Sickle Cell Fund

Betty S. Pace, M.D., Interim Division Chief, Pediatric Hematology/Oncology, Augusta University

Lunch 12:00pm-1:00pm

American Society of Hematology (ASH)
Sickle Cell Disease Initiative Update
1:05pm-1:20pm LaTasha Lee, Ph.D., MPH, Manager, Sickle Cell Policy and Programs, American Society of Hematology

Corporate Presentations
ApoPharma 1:20pm -1:40pm Michael Spino, Pharm.D., Bs.C., Phm., President
Emmaus Life Sciences 1:40pm – 2:00pm Yutaka Niihara, M.D., MPH, Chief Scientific Officer & Co-Founder
Global Blood Therapeutics (GBT) 2:00pm – 2:20pm Ted W. Love, M.D., Chief Executive Officer
Modus Therapeutics 2:20pm – 2:40pm Ellen K. Donnelly, Ph.D., Chief Executive Officer
Break 2:45 – 3:00pm
EpiDestiny 3:00pm – 3:20pm Santhosh Vadivelu, Ph.D., President and Chief Executive Officer
Imara 3:20pm – 3:40pm James McArthur, Ph.D., Founder, President and Chief Executive Officer
Bioverativ (BIVV) 3:40pm – 4:00pm Bill Hobbs, Executive Medical Director, Clinical Development
Prolong Pharmaceuticals 4:00pm – 4:20pm Glenn Kazo, President
Sickle Cell Disease Association of America (SCDAA)  
SCDAA Update 4:25 – 4:45pm Sonja L. Banks, President & COO, Sickle Cell Disease Association of America
Closing Remarks
  4:45pm Brian M. Culley, Conference Chair

Conference Presenter and Sponsor Alumni

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